Effect of family-centered home motor intervention on the functioning of individuals with Duchenne

Abstract

The objective was to investigate the impact of a Home Motor Intervention Program (PIMD), with a family-centered approach, on the functionality of individuals with Duchenne Muscular Dystrophy (DMD). A series of cases was carried out between November 2020 and  June 2021 and applied to the gross motor function of  the upper and lower limbs before and after PIMD,  during 16 sessions. Six children between 12-13 (±2.90) years of age remained; 9.14 (±0.90) years for loss of  ambulation and 6.38 (±1.06) years for age at diagnosis. The initial Motor Function Measure was  47.8 (±20.13) and final, 56 (±20.53); on the Vignos  Scale, initial was 7 (±1.73) and final, 6.4 (±1.95); on the Brooke Scale, initial was 2.0 (±1.30) and final, 2.2  (±1.22); in the Performance of the Upper Limb, initial  was 28.29 (±11.94) and final, 35 (±13.28). In the ambulatory child, the initial total North Star  Ambulatory Assessment (NSAA) mean score was 25  and the final score was 27. Therefore, PIMD can be an  alternative to prolong the functionality of the clinical  course of DMD, in periods without face-to-face  intervention. Telerehabilitation is a promising strategy, however, training of the health care team and parental involvement is required.